

We are thrilled to share our findings from our survey on DEI efforts in rare disease organizations. Special thanks to our partner, Rare Disease Diversity Coalition, and Upequity’s Principal Investigator, Dr. Teneasha Washington, for the amazing work!
We are excited to offer the full 36-page “A Report of Survey Findings: Diversity, Equity, and Inclusion Efforts in Rare Disease Organizations” released on 02/28/2023 for free download.

from a rare disease



Who We Are
Upequity delivers patient-centered, evidence-based research, novel projects and incubates emerging entities to drive improved access to quality, affordable healthcare for underserved populations with rare and serious health conditions.
Our North Star aim is where quality and affordable healthcare is accessible to all who need it. This is our guide, our anchor, our beacon, and inspiration in all that we do.