Helping Drive Rare Disease Forward
Providing Real World Evidence and Exploring Change
Upequity delivers patient-centered research and novel, evidence-based programs and services that improve access to quality, affordable healthcare for underserved populations with rare and serious health conditions.
It takes a united effort to truly impact lasting change and we are committed to contributing to the collective health equity movement. Our success is defined through our work to advance system and policy changes, eliminate barriers, and produce tangible improvements in the lives of families with rare disease.