Industry News

Upequity Announces the Launch of a New Health Equity Research Project

PRESS RELEASE: MARCH 1, 2023 Upequity and The Coalition for Hemophilia B announced a joint project to conduct critical research today. The study, Perspectives of Patients (POP), will conduct an analysis to gain a better understanding of the needs of Hemophilia B patients and caregivers from diverse communities through the lens of the patient and …

Upequity Announces the Launch of a New Health Equity Research Project Read More »

Diversity, Equity, and Inclusion Efforts in Rare Disease Organizations Survey Report

Industry News / February 28, 2023 February 28, 2023

We are thrilled to share our findings from our survey on DEI efforts in rare disease organizations. Special thanks to our partner, Rare Disease Diversity Coalition, and Upequity’s Principal Investigator, Dr. Teneasha Washington, for the amazing work! We are excited to offer the full 36-page “A Report of Survey Findings: Diversity, Equity, and Inclusion Efforts …

Diversity, Equity, and Inclusion Efforts in Rare Disease Organizations Survey Report Read More »