Anna Landseadel

Anna lives in Indiana with her husband and their seven children. They were therapeutic foster parents for 18 years, specializing in caring for children with rare diseases - many with severe medical and behavioral special needs. Anna has worked or volunteered with The Villages of Indiana, Prader-Willi Syndrome Assocation USA, Hemophilia of Indiana, Hemophilia Federation of America, and Upequity. She has advocated at the Indiana State House for foster parent rights and in Washington DC for rare disease awareness. Anna Landseadel holds a BS degree in Business Administration from Indiana University. As a foster and adoptive parent, she has cared for children with Hemophilia, Phenylketonuria (PKU), cerebral palsy, metachromatic leukodystrophy, fetal alcohol syndrome, Reactive Attachment Disorder (RAD), bi-polar disorder, shaken baby, and other attention and mood disorders.

Upequity Announces the Launch of a New Health Equity Research Project

Industry News, Upequity News / March 1, 2023

PRESS RELEASE: MARCH 1, 2023 Upequity and The Coalition for Hemophilia B announced a joint project to conduct critical research today. The study, Perspectives of Patients (POP), will conduct an analysis to gain a better understanding of the needs of Hemophilia B patients and caregivers from diverse communities through the lens of the patient and …

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Diversity, Equity, and Inclusion Efforts in Rare Disease Organizations Survey Report

Industry News / February 28, 2023

We are thrilled to share our findings from our survey on DEI efforts in rare disease organizations. Special thanks to our partner, Rare Disease Diversity Coalition, and Upequity’s Principal Investigator, Dr. Teneasha Washington, for the amazing work! We are excited to offer the full 36-page “A Report of Survey Findings: Diversity, Equity, and Inclusion Efforts …

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You’ll NEVER be a Girl!

Rare Reflections / November 18, 2022

It’s transgender awareness week. For most Americans, it’s a time to shake their heads and wonder what in the world is wrong with people. They probably believe that being transgender is just a way for individuals to seek out attention. They may feel that it’s just the cultural atmosphere where everyone seems to want to …

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