The Lab

The Lab is a platform for experimenting with interventions, projects, and program ideas that can be tested, shared, or incubated. Efforts in the Lab advance evidence-based work and leverage data to guide actions and use or create new best practices that can be shared broadly.

Lab projects are aimed at collaborative efforts that encourage continued growth and advancements in practices that can be directly beneficial to families with rare and serious health conditions. Key projects and pilot areas focus on Patients, Caregivers, Families and Organizational Non-profits.

Our current project interests are heavily focused on developing projects that directly improve the lives of underserved and underrepresented populations living with rare and serious chronic health conditions.

Please contact us directly to discuss mutual project interest areas at

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