Upequity delivers patient-centered research and novel, evidence-based programs and services that improve access to quality, affordable healthcare for underserved populations with rare and serious health conditions.
It takes a united effort to truly impact lasting change and we are committed to contributing to the collective health equity movement. Our success is defined through our work to advance system and policy changes, eliminate barriers, and produce tangible improvements in the lives of families with rare disease.
We conduct leading patient-centered research focused on projects that support advancing systems or policies that improve the care for underrepresented and underserved populations in rare disease. For specific rare disease research, we typically partner and collaborate with experienced patient advocacy organizations in that disease area.
Our studies tend toward mixed method strategies that gather and analyze quantitative and qualitative data. Studies are IRB (Institutional Review Board) approved and led by researchers and PhD-level professionals.
Upequity leads its own lab projects and programs, provides operations to coalitions, as we as acts as an incubator and accelerator for other nonprofit organizations building their own rare disease platforms.
We test novel, evidence-based programs and projects that facilitate awareness and education and amplifies the voice of underrepresented patients and families. Our Lab allows for experimentation with ideas that may (or may not) work in a safe environment!